The Colon Cancer Storytelling Strategy Action Group has been working to increase colorectal cancer (CRC) screening (Objective 2 of Cancer Plan MN 2025). This group hopes to impact American Indian men, women, and cancer survivors by supporting a CRC survivor in telling his story. Robert DesJarlait (Anishinaabe from the Red Lake Nation) shared his CRC story so that other Native people in Minnesota can understand the need for early detection and screening. Additionally, Joy Rivera (Haudenosaunee), CHW at the American Indian Cancer Foundation (AICAF) provided education about screening options. They attended 6 Powwows across Minnesota where cancer education is not always available.
At each Powwow, DesJarlait carried an American Indian eagle staff which honors cancer survivors during grand entry. Later during the event, DesJarlait addressed all attendees on stage. He shared his story, focusing on the role that regular screening can have on early detection and survival. At the end of his story, DesJarlait shared that AICAF was there to answer questions and discuss screening options. Rivera had a table at each event and reported high traffic and engagement.
To keep the story alive, AICAF filmed the work done on this project. This video will be used to continue to share DesJarlait’s story and educate American Indians about the need to be screened regularly. Additionally, the group created a social media package for clinics <october-newletter-colon-cancer-soc-media-toolkit>. The package includes sample Facebook and Twitter posts on screening with a focus on survivorship using DesJarlait’s story.
This group elevated the voice of a Native American CRC survivor whose story might not be heard. By recording their work, many more will benefit from the wisdom shared. Current partners of this group include AICAF, the Colon Cancer Coalition, and MDH SAGE Scopes Program.
